Personal Stories

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In the Death with Dignity movement we all have experiences to share. These are our constituents' personal stories of courage, pain, joy, fear, sadness and hope.

To tell your story and help others understand why Death with Dignity laws are important please send an email to Melissa.

Always remember: you are not alone.

Board Member Spotlight: Betty Rollin

Betty Rollin

We've spotlighted several of our staff members. Today, we would like to shine the light on one of our board members, Betty Rollin.

Betty Rollin is a TV correspondent, accomplished author, and sought-after speaker. A former correspondent for NBC News, her special reports for Nightly News included a series on the Native Americans of Pine Ridge, South Dakota, which won both the duPont and Emmy awards. She now contributes reports for PBS' Religion and Ethics Newsweekly.

Rollin is the author of seven books, including First, You Cry, a moving story—the first of its kind—about her breast cancer and mastectomy. Published in 1976 and re-published in 2000 in honor of the author's 25th "cancer anniversary", it received wide critical acclaim and was made into a television movie starring Mary Tyler Moore as Ms. Rollin.

Read more: Board Member Spotlight: Betty Rollin

A Social Worker's Role at End of Life

Kevin Kozin, MTS, LICSW

Kevin Kozin, MTS, LICSW, is a clinical social worker and therapist and formerly worked as a hospice social worker. He's currently a board member of the National Association of Social Workers in Massachusetts and serves as the Chair of the Mental Health and Substance Abuse Committee. He works with adolescents, adults, couples, and families through psychotherapy and grief counseling, which lead to healing results.

The New England Journal of Medicine published an article this April titled, "Implementing a Death with Dignity Program at a Comprehensive Cancer Center". This well-written article takes a candid look at the demographics and experience of a particular cancer center in Washington state, where the Death with Dignity Act has been in effect since March, 2009. Death with Dignity refers to the Washington and Oregon statutes which allow individuals who have six months or fewer to live (as determined by two physicians) and have the capacity to make medical decisions the option to request prescribed medication which allows for a peaceful and painless death.

Read more: A Social Worker's Role at End of Life

Alzheimer's Disease and Dementia Mental Health Advance Directive

Portrait of Alzheimer's by GollyGforce on Flickr

This blog post is the third in a series of guest posts by Arashi about end-of-life care planning and documentation in honor of National Healthcare Decisions Day.

Last December, Compassion and Choices of Washington unveiled a new kind of advance directive for life planning while living with Alzheimer's Disease and Dementia. This document is the first of its kind focused on these specific challenges. With a similar purpose as the living will, the Alzheimer's and Dementia directive aims to have a person's intentions known when the person isn't in a place to speak for him or herself.

The Alzheimer's directive is different from the usual advance health care directive. An advance health care directive is used to specify what medical actions should be undertaken if the patient is too ill or incapacitated to make those decisions. A typical question for those completing these documents is whether or not the patient wants aggressive medical treatment—such as a feeding tube or artificial ventilation—when the patient is dying or in a persistent vegetative state.

Read more: Alzheimer's Disease and Dementia Mental Health Advance Directive

This Week in the Movement

Throughout the week, we keep people up-to-date with information about the Death with Dignity movement and other topics related to end-of-life care through Facebook and Twitter. Below are highlights from this week.

Efforts regarding Death with Dignity:

Read more: This Week in the Movement

New England Journal of Medicine Looks at Washington's Death with Dignity Act

Dr. Remmel with his sons, photo provided to NBC News by Grace Wang

When Washington's Death with Dignity Act took effect in 2009, medical groups throughout the state took the law's built-in safeguards as a guide for formulating their own internal policies for honoring their terminally ill patients' new legal rights. One of these institutions, the Seattle Cancer Care Alliance, just published an analysis of their experience with patients who requested the prescribed medication in the New England Journal of Medicine. Their conclusion: "Overall, our Death with Dignity program has been well accepted by patients and clinicians."

Echoing what we've seen through the Washington Department of Health's annual reports of usage, this study found the law is used by a small minority of the clinic's patients and "patients and families were grateful to receive the lethal prescription, whether it was used or not."

Read more: New England Journal of Medicine Looks at Washington's Death with Dignity Act

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Defend dignity. Take action.

You are the key to ensuring well-crafted Death with Dignity laws for all Americans. With your financial and volunteer help, the Death with Dignity National Center, a 501(c)(3), non-partisan, non-profit organization, has been the leading advocate in the death with dignity movement. Member contributions helped us pass a new Death with Dignity law in Washington, defend the Oregon law, and provide education and outreach programs for the vitality of the death with dignity movement.

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