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from our blog: living with dying |
It's Scary to Talk About Death, But We Need to Start Somewhere
Posted by Guest Blogger on July 26, 2011
Briget Wandruff is a Social and Cultural Anthropologist, writer, and currently resides in New York. After experiencing the loss of a father from brain cancer, the words Right to Die and Death With Dignity have become common language. Today, Briget is pursuing a career in palliative and end of life care and supports the right to end-of-life choices.
A few years ago, my mother was going in for back surgery. She talked about the stacks of paper she had to sign releasing the hospital of any responsibility should she die as a result of, well, anything short of malpractice. My mother is a planner, and since my father's death in 1989 and her sister's death ten year later, Mother's been planning for her own death.
After her sister's death, we talked about last wishes. She sat me down in her Barcalounger and forced me to listen to her Funeral CD. On it was "A Little Bit of Rita" ("because it makes me happy"), "Greensleeves", and "Seventy-six Trombones" among others. ("I want to tell you what each song means to me.") The only thing I remember from that day some nine years ago was the bit about "A Little Bit of Rita".
Despite being Catholic she wanted to be cremated. Mother is claustrophobic — that was one reason — but moreover, some time back there were floods in the Southeast, caskets rose to the surface, and bones mixed with the bones of others. She's terrified of her bones mixing with other bones, or having her casket rise. She wants to be set adrift in the Gulf of Mexico, it's where she grew up, spent her teenage summers on Padre Island — good memories — and she still goes to Padre Island. ("But it's illegal to scatter ashes in the Gulf.") She proceeded over the years to investigate how her wish to be set adrift could be accomplished without me, her only child, ending up in jail or fined two thousand dollars I don't have. ("Not exactly something you can put on the company card.") More research, and on one of our calls she told me she found a biodegradable urn.
Mother's had a Living Will for as long as I can remember. She's adamant about her dignity, not wanting to be hooked up to machines, no tubes, no force feeding or hydrating, no resuscitation if doctors know by doing so it would only prolong her suffering. In giant letters, "NO HEROIC MEASURES." She'd like the Right to Die on her own terms.
Even after the years of open discussions and pre-planning, the preparations for her back surgery opened up a very possible reality that something might happen: she might die or live and lose what she defined as Dignity — it's very important for a person to define what dignity means to them. In preparation for the worst scenario it was clear that as much as we discussed last wishes there were still things to hammer out. Decisions about the house, the care of my step-fatherish type person, and what I could afford when she did die. If there's money left after everything she wants it to go to Ronald McDonald House charity. "The funeral is for you," she said, "I don't need one, I just want you to play my CD."
Mother survived the surgery. What we have after that experience and level of preparation is a clearer understanding about what she wants, how to handle her finances, the house and special items and her definition of Dignity. And the reality that no matter how much we talk about death and preparation, these remain scary conversations — at times a little absurd — but none-the-less must be had.
Mother and I came up with a plan for her remains. Despite last summer's oil spill in the Gulf of Mexico, Mother still wants to be set adrift. We've decided I'll put her remains in a beach bucket, mix her ashes in the sand and build a sandcastle out of her.
Have you had the talk? To start a conversation with your loved ones, you can lead off with, "I read the craziest thing today. A woman wants her daughter to take her ashes and use them to build a sandcastle…What do you want?"
Defend dignity. Take action.
You are the key to ensuring well-crafted Death with Dignity laws for all Americans. With your financial and volunteer help, the Death with Dignity National Center, a 501(c)(3), non-partisan, non-profit organization, has been the leading advocate in the death with dignity movement. Member contributions helped us pass a new Death with Dignity law in Washington, defend the Oregon law, and provide education and outreach programs for the vitality of the death with dignity movement.









Comments
I love this article and hope that everyone has the discussion with their husband, wife, parent or sibling. It does hurt to talk about the issue, no one likes to think about it. However, having this talk now is less hurtful than having to try and figure "what to do" when you're on your own.
Lovely article. Thanks for sharing your story, especially of the sandcastle. I will definitely be sharing that story with others! I may be biased being an author of a book of patients' stories, but I feel that stories are the way people can comprehend the otherwise incomprehensible. Every story is so important! Thanks for sharing!
Well written article.
I have come and am closer to death than I ever was before (duh). I am working on my living trust right now.
Thanks for writing this, Bridget. Beautiful I love sand castles. It is amazing how BP can spill a gazillion barrels of oil in the Gulf and that biodegradable remains are verboten.
I've had the talk with my mom and though sarcastic, her intentions are clear. She would like to drop dead walking to work. If she is not so fortunate she has asked me to a) shoot her in the head if she ends up in the care of my sister (who is a nurse); and, b) make sure she dies as quickly as possible if she is incapacitated - I should use the same gun (which I don't own) should plan a not come into effect.
She wants to be cremated and doesn't care where the ashes go so that part is up to me. I would probably choose to add her ashes to a reef reclamation project. I'm thinking I would like a burial at sea, but the kind where you get a permit and dump the whole body for all the fishes to munch.
What an amazing example of dying with dignity. In fact, I would call it living powerfully until your last breath. Life is a journey, death appears to be the final frontier. Everyone IS going to die, question is are we going to be scared of the inevitable or are we going to live so we leave from here with no regrets? I recommend that everyone must read this article.
My mother is the same way as the mother in the story. She has a living will, and has chosen a place to donate her body. My father had the same end.
I have the same feelings a your mom-no heroic measures- and send me away.
Say your goodbys in a memorial service.
And tell those close as soon as you can!
Use the "Five Wishes" also.
It is a way to get it all out and explain your wished to loved ones.
Thanks for sharing your story. It will inspire others to do the same.